Just Got Diagnosed, What Do We Need To Do?

If your child has recently been diagnosed with autism, you're probably feeling a mix of emotions—relief, confusion, fear, hope. That’s completely normal.

You’re not alone, and there is support.

This page is here to help guide your first steps, connect you with resources, and offer encouragement as you begin this journey.

Take a Breath—You’re Doing Great

Receiving a diagnosis doesn’t change who your child is—it simply opens the door to services and support that can help them thrive. Getting a diagnosis can bring up a mix of emotions—relief that you have answers, fear about the future, uncertainty about what to do next. All of that is normal. You’re not expected to have it all figured out today. What matters most is that you love your child and are seeking answers. That’s the most powerful first step you can take.

Steps After Diagnosis

1. Learn About Autism

Understanding autism spectrum disorder (ASD) can help you advocate for your child and make informed decisions. Autism is a neurodevelopmental condition that affects communication, behavior, social skills, and sensory processing. Every child’s journey is unique.

Start here:

2. Start Building a Care Team

After a diagnosis, your child may benefit from support services like:

  • Applied Behavior Analysis (ABA)
  • Speech-language therapy
  • Occupational therapy
  • Developmental pediatrics
  • Physical therapy (if needed)

You don’t need to find all these providers overnight. A good place to start is asking your diagnosing clinician for referrals or calling your insurance provider to ask what services are covered.

3. Contact Your Insurance

Call the member services number on the back of your insurance card and ask:

  • Do you cover ABA therapy?
  • What providers are in-network?
  • Is a referral or prior authorization needed?
  • What is my deductible or copay for therapy services?

Also consider applying for Medicaid or a Medicaid waiver program in your state (especially if your child may need long-term support).

4. Get on Waitlists (And Don’t Be Discouraged)

Some services may have waiting lists. Don’t let that stop you. Add your child to the list—and while you wait, you can:

  • Join online parent support groups
  • Learn behavior strategies from trusted autism organizations
  • Begin at-home routines that support communication, visuals, or calm sensory spaces

5. Connect with Other Parents

No one understands the ups and downs of this journey like another parent walking it too. Consider joining:

  • Local Facebook groups or parent networks
  • Online communities like MyAutismTeam
  • Parent support groups through community centers or nonprofits

You’ll find real-life tips, empathy, and encouragement.

Reminders for the Journey

  • You are your child’s greatest advocate. Your love, presence, and patience are more powerful than any therapy.
  • Progress may be slow—but it is real. Celebrate the small wins. They add up.
  • Take care of yourself, too. You matter. Your health and well-being impact your child’s growth, too.

Helpful Resources

This diagnosis is not an end—it’s a beginning.

Your child is still the same beautiful, unique person they were yesterday.

With love, support, and time, they can thrive.